- Malabsorption and
Delinquency was written by George Von Hilsheimer back in 1977.
Besides blaming celiac disease for juvenile delinquency, it covers many
of the health problems that come from malabsorption. Shows that there
was plenty of knowledge back then, just no publicity. George Von Hilsheimer now has
his own web site.
- Peter Thompson has published an old edition of his book Gluten-free Cookery -
The Complete Guide for Gluten-free and Wheat-free Diets on the web.
He also runs a web
discussion board.
- More than four dozen Ron Hoggan Articles have
been collected and put on the web. They argue that various other
disorders of the body have strong gluten connections. Leading edge
analysis of the medical literature.
- Here is a page with annotated links to other pages on The Paleolithic Diet. Sometimes
called the hunter/gather diet, this pre-agricultural diet is where our
digestive systems have evolved to. It fits in well with the gluten-free
diet.
- I have been collecting various Recipes and Food Preparation Tips,
mostly for alternative gluten-free grains, e.g. arrowroot, buckwheat,
millet, and quinoa. Also other useful GF things.
- JoAnn Betten has collected many recipes that are gluten-free,
dairy-free, bean-free, and free of other Neolithic foods. They have
been organized like a cookbook at the PaleoFood Site.
- Rosemary's Gluten-Free Web
Pages has mostly recipes, links, and contains information on
gluten-free food in mainly Melbourne and Victoria. Also has about a
dozen of her recipes.
- GF Product Information
in Canada lists food manufacturers and the products they have that
are gluten-free.
- Sean Sweeney has a comprehensive page on Gluten-Free
Brewing and his experiences.
- Roger Scrafford has a Gluten-free Beer Web
site. A gathering place for people interested in brewing (and of course
drinking) a flavorful but gluten-free beer.
- Lisa Lewis, PhD, has put up Understanding and
Implementing a Gluten & Casein Free Diet. An excellent web page on
diet and autism. Explains what is happening with intestinal
permeability, etc. 46K
- Linda Blanchard's Wheat Free Zone is a
site with some a forum, recipes, and a gluten-free foods database. See
her Ingredients to Watch For (and Why).
- Abigail Neuman has a page Is it FMS, CFS, or
Celiac Disease?. Has the story of her 20 year struggle to find the
correct diagnosis. A good read. Also a
list of gluten-free foods.
- Lucy Shriver has The
Gluten Free Kitchen, a comprehensive site with lots of sub-pages,
including a mailing list, chat groups, and a Campaign for Better Food
Labels.
- Wheat-free
Baking Recipes by Catriona Mackey, Marion Bowles, and Jack Campin.
Watch out for the recipes which contain oats.
- Chuck Roberts has a page of Celiac
Media contacts and Food Manufacturers. It has email and web URLs of
nationwide news organizations/shows and food manufacturers. There are
also links to email all news orgs or all food orgs at once. But just a bit out-of-date.
- Jean Fremont has a page on Celiac Disease in
Canada. Also has page on the Celiac Disease
Conference held in NYC on Saturday, November 9, 1996. Also see list
of 800 numbers
for Canadian food manufacturers.
- Mary Brooke, B.Sc.Nutrition, has a site on Gluten Intolerance/Gluten-Free
Diet. Includes a general overview. She is beginning to focus on the
relationship between
gluten ingestion and multiple sclerosis. [now in archive.org]
- Sandra J. Leonard has Gluten-Free
Breads & Me - Tackling a life-changing diet head on and publishes
The Gluten-Free Baker Newsletter.
- Sarah Chopping has put up Gluten-Free InfoWeb. Can
search lists of brand name food products which might be gluten-free,
meaning which foods the manufacturers consider to be
gluten-free.
- Allan Gardyne in Australia has Best gluten-free
recipes. He also sells some.
- The Clan Thompson sells
two pocket guides: Gluten Free Pharmaceutical Products and Living WHEAT
FREE and Without Gluten. Excerpts are at the site.
- Steve Plodgett has a page with pharmaceutical information Gluten Free
Products and at the
bottom it has the phone numbers of the manufacturers.
- Gluten Free & Casein Free
Diet has become the leading web resourse for parents of autists that
are using dietary intervention.
- Lori Alden has put up Wheat
Flours, which is a long list of substitutions, including many that are
GF.
- Special
Needs Info is a site for information on gluten and casein free
diets for autists. [now in archive.org]
- Peter Finch in Cardiff, Wales has put up some of his celiac poems
on his The
Gluten Page.
- Jess's Home
Page is a cute site by a celiac kid.
- Shirley Hartung has written a book Muffins From The Heart. The
site also has tips and celiac stories.
- Marilee's Teff Page has
many links to information, injera recipes, and sources for teff.
- Innseekers has a long list of Gluten-Free Diet
Inns.
- Thomas Viehof in Germany has some versions of Restaurant-Cards in different
languages. He now has a new site called www.zoeliakie-info.de. See the
new site for more links to other sites in German.
- Hans Björknäs of The Wasa Workgroup on Intestinal Disorders also
has several pages on celiac disease in Finnish and Swedish. They are
off his home
page.
- Celiac
Disease is the National Digestive Diseases Information
Clearinghouse's overview page. Many articles.
- The Combined Health Information
Database has lots of references to celiac related information. Go
to "simple search", enter celiac in the search term, set the number of
documents per page to 100 or MAX, and then hit search.
- Prof. Markku Mäki, Institute of Medical Technology, University of
Tampere, Department of Paediatrics, Tampere University Hospital in
Finland has a site. It
highlights their project that seeks to widen the definition of celiac
disease and their statement that they have
proof that there is a condition that they are calling celiac trait that
runs in families of celiac.
- Changing Features of
Coeliac Disease was held July 10-12, 1998, in Tampere, Finland.
Conference proceedings are now available. Proceedings of the 7th
International Coeliac Congress 5 - 7 September, 1996 in Tampere,
Finland are also available.
- Science Daily has an article Celiac
Disease Not As Uncommon As Once Thought, Say Researchers At Wake
Forest.
- This page has a detailed
discussion of the genetics of celiac disease. It is from a database
of articles on Mendelian Inheritance in Man from the Johns Hopkins
University's National Center for Biotechnology Information. They also
now have a
page on DH.
- Center for Celiac
Research was set up by the U. of Maryland to increase the awareness
of celiac disease. Site has information on their serological study to
determine its prevalence in the US. See site for research update and
info on how you can participate in the screening study.
- Donald D. Kasarda, a wheat protein researcher with the USDA, has a
discussion of Grains
in Relation to Celiac (Coeliac) Disease. Includes a grain taxonomy
chart.
- Dr. Kalle Reichelt of the Pediatric Research
Institute in Oslo, Norway has been researching the impact of gluten,
gliadin and casein intolerance on certain individuals with
developmental delays. A collection of his Net
articles contain papers on the connection between Mental Disease,
Autism, Allergies, etc., and Celiac Disease. Talks of the opioids
formed in the gut. It is 80K and technical.
- Here is a 1K
abstract taken from a journal paper written by Dr. Kalle Reichelt.
It was put up by the AIA, or Allergy-induced Autism Support and
Research Network. Their home
page.
- From
the Neolithic Revolution to Gluten Intolerance: Benefits and Problems
Associated with the Cultivation of Wheat, by Luigi Greco. A history
of gluten intolerance and why it is so common.
- An
abstract on "Measurements of the jejunal unstirred layer in normal
subjects and patients with celiac disease."
- Celiac
Disease in Children. An introduction from the Vanderbilt Children's
Hospital .
- A page on what celiac researcher Martin F. Kagnoff,
M.D. at UCSD is up to.
- Paul Shattock at the U. of Sunderland in the UK has a page on The Use of
Gluten and Casein Free Diets withPeople with Autism.
- Cornell buries its celiac discussion in the middle of a huge 103K
page on gastrointestinal diseases. This page needs some chopping
up. Use the find button to find celiac. Has four good biopsy images.
- Introductory
Anatomy: Digestive System, by Dr D.R. Johnson in Leeds, UK. Easy to
read.
- Wayne State U. Pharmaceutical Biochemistry has a course on
Carbohydrate Metabolism. [now in archive.org]
- The U. of Wisconsin Library has a page with some Celiac
Resources.
- Good Discussion
of Selective IgA Deficiency from The Jeffrey Modell
Foundation. Mentions association with celiac disease. [now in archive.org]
- Gluten intolerance is now a recognized cause of brain calcifications and epilepsy. Here are a
bunch of Medline abstracts on this.
- The
Digestive System has a basic overview of the human digestive
system, and ones in simpler creatures.
- Gluten
Free Recipes from the SOAR archives.
- In Wheat
Protein Can Trigger Severe Headaches they found that limiting
gluten--a protein found in wheat and other grains--reduced symptoms of
severe headache in seven out of nine patients.
- For 376 or more references on celiac, go to FINDarticles.COM
and do a search on celiac.
- Coeliac
disease specific antigen found. Researchers at Oxford have
identified a peptide in wheat that elicits a specific immune response
in people with coeliac disease. This discovery of a coeliac disease
specific antigen could offer a new route for treatment of the
condition.
- A search on Medscape will
return hundreds of abstracts of articles about Celiac Disease. Free
registration required. Here is a good search to get you started:
Recent Medline Celiac Disease Articles.
- Coeliac
disease is a review based on the proceedings of regular
international symposiums and meetings on coeliac disease, textbooks,
review articles, and searches of Medline. See links at the page bottom
to eLetter responses to the article.
- An editorial in the British Medical Journal: Gluten
sensitivity: a many headed hydra. Subtitle is "Heightened
responsiveness to gluten is not confined to the gut." Written by
Hadjivassiliou, Grunewald, and Davies-Jones.
- Coeliac
disease in primary care: case finding study in the BMJ finds that
celiac disease is far more common than generally thought.
- Prospective
study of body mass index in patients with coeliac disease was
published in the BMJ. It reports that of 50 newly diagnosed celiac
patients, 11 were underweight, 22 were within the normal range, and 17
were overweight. This would appear to challenge the conventional
perspective on underweight celiacs.
- Genome
Search in Celiac Disease is a comprehensive and technical page from
the The American Journal of Human Genetics January 5, 1998
issue.
- An abstract from The American Journal of Clinical Nutrition: Nutritional
status of newly diagnosed celiac disease patients before and after the
institution of a celiac disease diet ---association with the grade
of mucosal villous atrophy. PDF version also available.
- Clinical
spectrum of biopsy-defined celiac disease in the elderly is an
abstract of a study by H.J. Freeman in The Canadian Journal of
Gastroenterology.
- The New England Journal of Medicine has an an
article in the May 2, 1996 issue: The
Prevalence of Occult Gastrointestinal Bleeding in Celiac Sprue.
- The NEJM has had articles on the oats controversy. But only the
original article is available to non-paying subscribers: A Comparison
of Diets with and without Oats in Adults with Celiac Disease.
- Abstract from The Lancet: Clinical, radiological, neurophysiological, and neuropathological characteristics of gluten ataxia. A study by Hadjivassiliou M, et. al.
- Citation from The Lancet: Does cryptic gluten sensitivity play a part in neurological illness? A
study by Hadjivassiliou M, et. al.
- Celiac.com is a very
comprehensive gluten intolerance related site.
- Kenneth Fine, M.D. now has his own site Finer Health & Nutrition. He
does consulting, including on gluten-free living. He was formerly with
Baylor University Medical Center. Site has some educational information
on celiac disease.
- Joseph Mercola's Optimal Wellness Center's site has Celiac
Disease: Fertility and Pregnancy. See link to his other articles
near the bottom.
- The Silly Yak Shirt
Company sells various T-shirts proclaiming the wearer to be gluten
or wheat free.
- The UK company 'Tepnel' sells Gluten
Rapid Test Kits which can be used to test foodstuffs. They claim it
has a high specificity for gluten. Lab kit also available.
- r-bioharm makes a lab
test for gluten. Go to Food and Feed Analysis and click on the green
dot for allergens. Then click on Gliadin.
- Nana's Kitchen sells
a Buttonellie Board for making pasta. A GF pasta recipe is at the
site.
- In the US ELISA Technologies is selling ELISA Food Testing Kits. They
claim them to be rapid and sensitive.
- eHow to Live
With Celiac Disease by Roxanne Nelson, RN is a page that would be
helpful to beginners. (Free registration required)
- AllRecipes.com
has a Gluten-Free Cookies section in their Special Diets section. Has
recipes for breads, cakes, and cookies.
- A drkoop.com search on celiac
turns up many pages. They are a little dated, and contains information
that can also be found elsewhere. But see what this once highly touted
site has to offer.
- Beer Stuff's Gluten Free
Beer Page has a recipe developed by Eric Constans. It is based on
malted buckwheat.
- Jackson Gastroenterology in PA has put up Gluten-Free Diet, an
intro with a nice chart of foods with and without gluten.
- Stephen J. Gislason MD has a food-related disease site Digestive Disorders; The
Gastrointestinal Center. Starts out with an introduction to the
Gastrointestinal Tract. Several pages there are relevant to celiac disease. Gluten and Cereal
Grain Disease has a good discussion on the various toxic proteins.
There is one on Dermatitis
Herpetiformis.
- The Creative Rice Baking
Web site sells a 45 minute video on bread making.
- Red Star Yeast has a site with Gluten-Free
Recipes (scroll down to bottom of page).
- MedicineNet has a 12K summary, which is now under a Celiac Sprue
Forum.
- A question and
answer page on gluten intolerance that is part of a series on "Ask
the Dietitian" by Joanne Larsen, MS RD.
- About.com has a section on Celiac
Disease/Gluten Intolerance in the allergy part of their site. A
couple pages are original, but most are links pointing into subpages of
sites that I list here starting at the top page.
- HealthWorld Online has Leaky
Gut Syndromes: Breaking the Vicious Cycle by Leo Galland, M.D.,
F.A.C.N. He's the top proponent of increased intestinal
permeability.
- Another informative site on Intestinal
Permeability.
- Celiac Disease and
Down Syndrome is an introduction by Dr. Len Leshin, MD. Part of a
Down's Syndrome site.
- Miss Roben's is a site
which sells gluten-free foods. She is also the author of The
Gluten-Free Kitchen.
- Bette Hagman now has numerous cookbooks. They are considered the best.
There are no publisher pages for them, but at her
page at Amazon.com you can find all of them listed (paper and hard
cover).
- Gluten-free
Cookery - The Complete Guide for Gluten-free and Wheat-free Diets
is the most popular gluten-free cookbook in the UK. All recipes meet
North American standards. This site contains the full text of the
cookbook!
- Carol Fenster has three or more Wheat Free, Gluten Free Cookbooks
for Food Allergies and Celiac Disease. They are also dairy and egg
free.
- Connie Sarros now has four Wheat-free Gluten-free Cookbooks: Desserts, Reduced Calorie, Kids and Busy Adults, and Special Diets (for those with additional diet restrictions).
- Almost 200 cookbooks can be found by a gluten-free
search at Amazon.com.
- A Video Guide for Making
Gluten-Free Bread was shown at the Iowa Fall Informational meeting.
It teaches you how to make a variety of gluten-free breads from one
basic recipe.
- Elaine Gottschall, author of Breaking the
Vicious Cycle, has a diet that is more restrictive than gluten-free,
and is used primarily by patients of inflammatory bowel diseases.
Includes almond flour based recipes. Mik Aidt in Denmark has an
extensive site on the Specific
Carbohydrate Diet. Has archives and many MB of material. Two
general discussions that include sections on the Gottschall diet: Crohn's
Disease and Ulcerative Colitis and Inflammatory
Bowel Disease Update, by Ronald Hoffman, M.D. This site has a slick
promo on the Gottschall book.
Includes Chapter 1 of the book.
- Aileen Bennett's Coping With
Celiac on Amazon. 21 stories from people with celiac
disease.
- Food
Allergy Field Guide: A Lifestyle Manual for Families by Theresa
Willingham, the mother of a child who can't eat wheat or dairy. The
book offers practical advice to build a child's "health-esteem", while
assuring that the child and family, friends, school, and other
caregivers are prepared to handle the occasions in a child's
life----school events, parties, field trips, and eating out.
- Chris M. Reading's Your Family
Tree Connection: The Family Tree Way to Better Health is a good
book to give to a family which suffers from ills that you think are due
to undiagnosed gluten problems. Since this is out-of-print contact
Keats Publishing, 27 Pine St. (Box 876) New Canaan, CT 06840 and ask
them to reprint it.
- See the review by Ron Hoggan of Can a
Gluten-Free Diet Help? How? by Lloyd Rosenvold at
Amazon.com.
- You can find a list of other books with a search
on Celiac Disease at Amazon.com.
- The Cook's Thesaurus has a good page describing Nonwheat Flours. Not
all of them are gluten free.
- The Kansas Grain
Sorghum Producers Association has a site. Sorghum, and also a
variant called Jowar, are gluten-free.
- Tables of contents from Advances in Cereal Science and Technology,
a series of books for sale at $80 each. Volume
VI gets into the grains in great depth. Includes chapter on the
celiac condition. Volume
IX includes immunological detection of gluten in foods, and
immunological responses to gluten in humans. Volume
X has a couple chapters on celiac disease/gluten and schizophrenia.
Includes the opioid concept as discussed by Reichelt.
- Willie Prejean's
Baking and Baking Science contains lots of information on baking
ingredients and what they do.
- Functions
of Baking Ingredients. A solid 15K introduction to gluten's role in
cooking.
- Perdue has put Magness et al. 1971 online in a huge
database with hundreds of crops. Detailed write-ups on each one.
Can find the gluten grains and some of the non-gluten ones, and most of
what you might want to grow.
- Flour-
Substitutes is a small page put up by the U. of Illinois Extension
Service.
- Celiac/Coeliac,
Dermatitis Herpetiformis (DH), Wheat/Gluten-Free is a page
describing the mailing list and all of its most comprehensive archives.
This is the major worldwide list with 3000 subscribers.
- All of the CELIAC
mailing list postings have been archived and are available on the
web. Also the archives
of the CEL-KIDS list are available.
- There is now a newsgroup called alt.support.celiac that is
independent of the mailing list.
- UK-Coeliac
is a mailing list for those people in the United Kingdom interested in
coeliac disease. Coeliac-UK was an
earlier incarnation of this list and the archives may still be of
interest (any new posts are spam).
- Abigail Neuman has set up a forum and chat on Delphi Celiac Disease
On-Line Support Group . Currently, Monday 8pm-9pm E.T. is a
scheduled moderated chat, and Wednesday 8pm-10pm E.T. is an unmoderated
chat (wait in chat room for others to arrive). The web based forum has
become very active. See past threads and thousands of posted
recipes.
- In the About.com Thyroid
Chatroom on Wednesday evenings 8-10 p.m. EST the topic is
Hypothyroid and Celiac. Discusses topics such as eating gluten-free,
taking thyroid medication, blood tests, energy levels and all the
complexities of these conditions.
- Celiac.com
has a Celiac Message Board.
- There is a list for Canadian only issues. To subscribe send mail
to majordomo@hwcn.org and in
the body of the message write: SUBSCRIBE celiac-canada. You can find
their archives and other
information here.
- coeliacaustralia
is a support group and information centre for people with coeliac
disease located in Australia.
- GFCFKids is a
mailing list for families with an autistic member on a gluten and
casein free diet.
- Suzanne Dawson has started a Yahoo Club: Living
Wheat and Gluten Free.
- Club Celiac has site for children and young adults to trade
information, recipes and chat. It is called Club Celiac Chat. There is a
group chat on Saturday and Sundays from 2 to 4 PM CST.
- Christopher Liebrich has a list
that is all in German.
- A page on a mailing list in
Spanish.
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